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The Sean W. Venezia Foundation

is a non-profit, all-volunteer,
501(c) (3) organization.

Helping Fund the Fight Against
Spinal Muscular Atrophy
The #1 Genetic Killer of Children Under the Age of 2
Spinal Muscular Atrophy, commonly referred to as SMA, is an inherited disease that destroys the spinal cord nerves that control muscle movement, which affects crawling, walking, head and neck control, and even breathing and swallowing.

Although SMA is as common as ALS (Lou Gehrig's Disease), it is not nearly as well-known because many of its victims die so young.

Currently, there is no treatment or cure for SMA. However, its cause is well understood and the "problem" gene has been identified. As a result, a cure could be on the horizon, but money is still needed to fund research and to help families that are currently impacted by this tragic disorder.

Cure SMA Walk-n-Roll!
Sunday, September 24,2006

Sponsor The Venezia Family in this year's Walk-n-Roll to cure SMA. If possible, come out and show your support.

Where: Horn Pond, Woburn, MA (rain or shine).
Registration at 9 a.m., walk begins at 10 a.m.

Sponsor us today!

"Life Is Beautiful" Family Support Program
A FREE Program available to families of SMA children

The intent of this program is to make certain that cherished moments are caught on DVD so families of SMA children can enjoy them for years to come. Available to all SMA children - regardless of type.

Learn more about the "Life Is Beautiful" Program.

Sean W. Venezia
9 months on earth. Forever in our hearts.

On October 20, 2003. Sean died from complications associated with SMA. View a one-minute clip of Sean's video and get to know a little boy whose very short life was filled with nothing but love.

Make Your Online Shopping Count

 

The next time you shop online with your favorite retailer, you can have a percentage of your purchases donated to: The Sean W. Venezia Foundation. Best of all - it's fast, easy, and FREE to do. Learn more.

㦬t;/font>2006, The Sean W. Venezia Foundation, Inc. All Rights Reserved.